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Duchess Of York Supports Mom In Baby's Struggle
By Dave Reynolds, Inclusion Daily Express
July 27, 2004

BANGOR, WALES--The mother of a six-month-old boy said Tuesday she would not give up in the struggle to keep her baby alive.

For the last four months, Luke Winston-Jones has been in Ysbyty Gwynedd hospital where he was diagnosed with Edwards syndrome, also known as "trisomy 18". Children with the genetic condition rarely live more than a few months.

Ruth Winston-Jones said that the hospital treated her son well until they determined his diagnosis.

"As soon as Luke was diagnosed with Edwards syndrome I just saw a complete shift in attitude from those who were treating him," she said. "They just gave up, they saw no point in treating him because they believed he was going to die."

Health officials said Tuesday they planned to ask the High Court for guidance as to whether they had to continue to treat Luke.

"The trust is seeking direction from the High Court about some very serious and difficult decisions that will have to be made about Luke's care in view of his very serious condition," said a spokesman for the North West Wales National Health Service Trust.

Mrs. Winston-Jones, who is separated from the boy's father, has enlisted the help of others, including Sara Ferguson, the Duchess of York.

"I cannot even begin to put into words how it feels as a mother to be facing this complete and utter nightmare," Winston-Jones told the Western Mail.

"The hospital has essentially given up on my son by launching this cruel legal bid. I cannot just stand by and allow my baby to die, they have all given up, but I will not."

On Tuesday evening, BBC News reported that NHS Trust officials announced they would postpone their application to the court -- for the time being.

"The Trust has had, and continues to have, Luke's best interests at heart," an NHS Trust spokesman told the BBC. "He continues to receive all care by doctors and nurses at the hospital."

Related:
"Hospital postpones baby court bid" (BBC News)

http://news.bbc.co.uk/2/hi/uk_news/wales/3931669.stm
"Edwards syndrome: trisomy 18; 18+ syndrome" (Contact A Family)
http://www.cafamily.org.uk/Direct/e18.html

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